Helen, Kathleen, Mary & Regina are representing Cork Fibromyalgia & Chronic Pain Support Group & are part of the Admin Team with Patch Us Back Up since January. We are placing as much of our resources as possible into this Fight, as it affects all members who suffer from Chronic pain. At a recent meeting, it was agreed that this would be our main project with Cork Fibromyalgia & Chronic Pain Support Group for the coming year. We are honoured to be part of Patch Us Back Up & feel it is a very important fight, to help ensure that resources/ facilities within the Health System are improved for Chronic Pain Patients, as well as fighting that no more of our medications needed to help us Living with Chronic Pain are affected. We will not stand back and allow the vulnerable to be targeted. We are fighting on behalf of all our members & those living with Chronic Pain.
Regards Helen, Kathleen, Mary & Regina – Cork Fibromyalgia & Chronic Pain Support Group
*** Official Announcement ***
In response to feedback received by Prof. Michael Barry, since April 1st, 2018 there has been numeral adjustments made to the online reimbursement system for the Versatis 5% Lidocaine Medicated Plasters. These changes were introduced in order to reduce the load on GP’s and facilitate hospital prescribers. The changes are as follows:
🔸It will be no longer mandatory for your GP to submit an application as all clinicians, once user registered with the PCRS, will be authorised to apply for reimbursement.
🔸All patient, including those with PHN (Post-Herpetic Neuralgia), will still need to be reviewed and approved by the MMP (Medicines Management Programme) prior to treatment. The current automatic approval for patients who receives antiviral treatment will no longer apply.
🔸Once approved for reimbursement from the MMP there will be no expiry on the duration of treatment, irrespective of the patients indication. As a result, applications will not need to be re-submitted. This also applies for currently approved applications to date, your clinician will just need to renew your prescription.
🔸In the event of an application being refused, an appeal can be sent directly by the clinician to the MMP at the following email: email@example.com. An appeal can also from the clinician via post to the following address: Professor Michael Barry, National Clinical Lead, Medicines Management Programme, Department of Pharmacology & Therapeutics, Trinity Centre for Health Sciences, St. James Hospital, Dublin 8.
🔸It is also extremely important that all additional information which supports the use of Versatis is submitted in order to assess the unmet clinical need and also to ensure an informed decision.
Although this is progress we have so much more to secure. Changing the appeals process, tick box for neuropathic pain, but we will still be looking for the GP & Pain Specialist to go back to prescribing with outlines to people suffering with PNP. We also want people seen far sooner in pain clinics.
Patch Us Back Up ~ #Versatis PostCard Campaign in conjunction with Sinn Fein Ireland
Our Postcard Campaign, requesting the Govt. to reinstate #versatis for ALL, was officially launched yesterday.
The FIRST person in IRELAND to sign a Postcard was Mary Lou McDonald.
We will be out in shopping centres across Ireland to get a target of 40000 cards signed by the Public & will be having a Peaceful Protest at The Dáil on May 30th, as well as meeting with the Health Commitee & hopefully Simon Harris. cards are also available to sign at local Sinn Fein offices. Both Helen (Chairperson), Kathleen (Secretary) & Mary (P.R & Finance), Committee Members of Cork Fibromyalgia Support Group are part of the Admin & Moderators Team with Patch Us Back Up Ireland. They are fighting hard for all Cork Members & Patients all over Ireland to ensure Versatis Patches are restored for all Chronic Pain Patients & are also fighting hard against the future removal of vital medications needed by Our Members to get by day to day.
On May 30th, Helen, Mary & Kathleen, will attend The Dail, for a peaceful Protest, They will also make a presentation to The Health Committee, & it is hoped that We will also speak with Minister for Health Simon Harris. They have been working hard on the Patch Us Back Up Campaign since January, & have greatly exposed the plight of Living with Fibromyalgia, & Chronic Pain conditions on various media outlets over the last few months. They have spoken numerous times on PJ Coogan 96fm, We thank P.J & Deirdre, for their continued support towards our campaign, Helen spoke to Joe Duffy on Liveline, was interviewed by TheJournal.ie & Evening Echo, as well as C103fm. Helen also appeared alongside Dr. Hegarty Pain Specialist on RTE’s Maura & Daithi Show, and gave a great insight into living with Fibromyalgia.
Over the past 3 months, Chronic Pain has been given a fantastic media forum, & for the first time in a long long time, Chronic Pain is in the Public Domaine. #patchusbackup#versatis Patch Us Back Up Patch Us Back Up #Versatis
Members have been busy knitting patches, The patches depict
Versatis Patches lost by so many, These have been sewn together to make beautiful blankets, which will be on display at The Dail, & will later be donated to various worthy causes. Visit this link to see some of the great work
Please visit https://www.facebook.com/PatchUsBackUpIrl/
to stay up to date on the Campaign.
We will be joining local Sinn Fein T.D’s & Representatives, in various locations (shopping centres) around Cork & Ireland in the coming weeks, to meet with the General Public, in order to sign as many Postcards as possible, We have 40000 Postcards to get signed nationally. These will be presented to The Health Committee & Minister Simon Harris on May 30th.
If you can HELP, please contact Helen, Kathleen or Mary on our closed Facebook Group.
If you would be in a position to attend our peaceful protest outside the Dail on May 30th, Please contact us, should you require help with Transport / Train Cost, please Contact us. We would love to have a great Gang from Cork in attendance.
Versatis patches are used to treat chronic nerve pain & Chronic Pain conditions.
These have been removed for pain relief from Drug Payment Schemes and Medical card schemes.
They cost e5 each and some people may need to use several on different areas of their body to relieve pain daily. It could equate to the same price as a daily train ticket from cork to Dublin! Or €360 per month.
They are vital for people who cannot take pain relief, or people with liver problems who cannot take medications for pain relief as well as many other chronic pain conditions.
Simon Harris & Professor Barry have been instrumental in the process of removing these from the reach of people who suffer chronic long term pain without consultation with patients.
Please support all those affected & help restore availability to patients again. Find us on Facebook: https://www.facebook.com/groups/167705747185368/
#patchusbackup #Versatis #Chronic Pain
Please copy and share on your page, Contact your local T.D, & Join the Campaign